Health insurance can be an important factor when dealing with debilitating conditions, such as amyotrophic lateral sclerosis.
More commonly known as Lou Gehrig’s disease, ALS can lead to muscle weakness and paralysis, while also proving fatal for some who have it. While causes for the condition are not known, a new effort from the Agency for Toxic Substances and Disease Registry could help researchers.
The ATSDR said a national registry for ALS was launched recently, and will include information about participating patients who have the condition. Scientists will be able to use the data to find common risk factors among those who have the disease.
Dr. Kevin Horton, ASTDR ALS program administrator, said better and more comprehensive data will be available if a large number of people take part in the registry.
“In addition, the registry provides a means to share information about research findings and clinical trials,” Horton said.
New federal reform rules put restrictions on health insurance companies denying people coverage because of pre-existing conditions. Other regulations are set to take effect in the coming years.
